Towards a sustainable sharing of data & samples collected during trials effectuated in resource-limited countries

On November 5, 2015, the Inserm Ethics Committee came together for a focus workshop on health research in developing countries.

The Inserm Ethics Committee, in partnership with the Wellcome Trust, the Fondation Mérieux, and the Global Forum on Bioethics in Research (GFBR), organized a workshop in Annecy with over thirty scientists and ethicists from developing and developed countries, in order to reflect upon and debate the way in which the sharing of data and biological specimens collected during clinical trials might be improved and protected in international research.

The benefits realized through the internationalization of research projects carried out in developing countries have in fact been felt to a greater extent in industrialized countries. This raises important ethical questions that were considered during this workshop. After sharing experiences from the field, the experts put together a series of recommendations and/or good practices for the parties involved in research.

With the participation of:

  • Katherine Littler
  • François Hirsch
  • François Bompart
  • Caroline Carbonnelle
  • Aïssatou Toure
  • Godfrey Tangwa
  • Douglas Wassenaar
  • Aïssatou Touré
  • Marc Brodin
  • Yaël Hirsch
  • Cathy Roth
  • Christophe Longuet